Holistic Health

Through maintaining good dental health and masticatory function, it reduces the risk of mucosal injury of digestive system and increase the healing process of bodily wound with nutritional balance and good intake...

Mild symptoms include dry eye symptoms, conjunctival foreign body sensation, and blepharitis. Severe symptoms include erosion of the cornea and conjunctiva, serious skin breakage, scarring, eyelid ectropion, and symblepharon...

Some EB patients have blisters in their oral mucosa or esophagus that cause difficulty in eating, which leads to frequent consumption of soft or liquid diets. However, due to the lack of dietary fiber in the soft diet, it is easy to bring about chronic constipation...

Human skeleton development requires sufficient vitamin D and calcium with appropriate weight-bearing exercises (such as running, weight training, skipping rope) to stimulate bone growth. Bone density decrease and osteoporosis will take...

Malnutrition is a common care problem for some EB patients, especially the Herlitz type of patients with recessive dystrophic epidermolysis bullosa (RDEB) and junctional EB (JEB). Reasons behind malnutrition include oral/esophageal blisters...

The wounds of EB patients are not ordinary chronic wounds. While these wounds continue to heal, new wounds are constantly produced due to the lack of protein that binds the epidermis and dermis. In addition, patients are often accompanied...

Chronic anemia is common in EB patients. Medical research has found that more than half of patients with anemia in severe JEB and RDEB subtypes. They are mainly Iron deficiency anemia) and Chronic disease-related anemia...

Family caregivers experience many challenges when caring for EB patients and experience substantial stress and overwhelming burdens. There are four stages they face are 1) transformation and helplessness...

Based on the strengths perspective, we believe that every patient is actually an "expert on his own problems" in the disease journey. Therefore, in addition to "solving problems" for them, we are also committed to assisting them in...

• No tape or adhesives should be applied directly on the skin!!  

• Avoid any friction or shear forces to the skin. Move by lifting (not sliding) on to the OR table.  

• Cut off adhesive portion of EKG leads...